Facts & Statistics About Epilepsy
The facts and statistics below will help you educate others about the reality of living with epilepsy and seizures. Share these facts with your friends and family to stop misinformation about seizures and make members of the epilepsy community feel more comfortable sharing their experiences.
Epilepsy Facts
1. You Can’t Swallow Your Tongue
It is physically impossible to swallow your tongue during a seizure.
2. If Someone is Having a Seizure, Do Not Force Something in Their Mouth
You should never force something into the mouth of someone having a seizure. Forcing something in their mouth may chip their teeth, cut their gums, or even break someone's jaw.
3. Do Not Restrain Someone
Don't restrain someone having a seizure. Most seizures end in seconds or a few minutes and will end on their own.
The Correct Seizure First Aid Is Stay. Safe. Side.
STAY with the person and start timing the seizure. Keep the person SAFE. Turn the person onto their SIDE if they are not awake and aware. Do NOT put anything in their mouth. Do NOT restrain them. Stay with them until they are awake and alert after the seizure. Call 911 if the seizure lasts longer than 5 minutes; they have repeated seizures; they have difficulty breathing; the seizure occurs in water; the person is injured, pregnant, or sick; the person does not return to their usual state, it's their first seizure; or the person asks for medical help.
Learn More:
Seizure First Aid Certification4. Epilepsy Is Not Contagious
Epilepsy is a neurological disorder; it cannot be transferred to another person like a cold or flu.
5. Anyone Can Develop Epilepsy
Seizures start for the first time in people over age 65 almost as often as it does in children. Seizures in the elderly are often the after effect of other health problems like a stroke or heart disease.
6. People with Epilepsy Can Do the Same Things
Most people with epilepsy live the same lives as people without epilepsy. They cook, play video games, go to school, and work.
However, some people with frequent seizures may not be able to work, drive, or may have problems in other areas of their life.
7. They Can Handle the Responsibility and Stress of Jobs
People living with epilepsy can handle careers with responsibility and stress. People with seizure disorders are found in all walks of life. They may work in business, government, the arts, and all sorts of professions. If stress bothers their seizures, they may need to learn ways to manage stress. But everyone needs help coping with stress from time to time! There may be some types of jobs that people with epilepsy can’t do because of possible safety problems or accommodations may be made. Otherwise, having epilepsy should not affect the type of job or responsibility that a person has.
8. The Same Treatment Doesn't Work for Everyone
Epilepsy is a chronic medical problem that for many people can be successfully treated. Treatment may include seizure medicines, dietary therapy, or surgery. Unfortunately, treatment doesn't work for everyone. AT LEAST 1 million people in the United States have uncontrolled epilepsy. There is still an urgent need for more research, better treatments, and care.
9. Epilepsy Is Not Rare
Epilepsy is not a rare disorder, 1 in 26 people will develop epilepsy during their lifetime. It can occur on its own or alongside other health conditions of the brain, such as:
- Cerebral palsy
- Intellectual disability
- Autism
- Alzheimer's disease
- Traumatic brain injury
- Stroke
There are rare epilepsies that affect a small number of people. Seizures may be difficult to control and there is a higher chance of other health conditions occurring.
Learn about different types of epilepsy syndromes.
10. Epilepsy Can Cause Early Death
While death in epilepsy doesn't happen frequently, epilepsy is a very serious condition and individuals do die from seizures. The most common cause of death is sudden unexpected death in epilepsy (SUDEP). While there is a lot we still don’t know about SUDEP, experts estimate that 1 out of every 1,000 people with epilepsy die from SUDEP each year. People can also die from prolonged seizures (status epilepticus). 1.9% of deaths in people with epilepsy is due to this type of seizure emergency.
Early death may also occur due to injuries or social concerns and barriers surrounding epilepsy.
11. Seizures Look Different from One Person to Another
What happens during a seizure may look different depending on who is experiencing them. However, seizures are usually stereotypic, which means the same things or behaviors tend to occur in a person each time they have a seizure. The seizure behavior may be inappropriate for the time and place, but it is unlikely to cause harm to anyone.
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Types of Seizures12. They Are Usually Not Physically Limited
People with epilepsy are usually able to do as much as any other person. During and after a seizure, a person may have trouble moving or doing their usual activity. Some people may have trouble with physical abilities due to other neurological problems. Aside from these problems, a person who is not having a seizure is usually not limited in what they can do physically.
Resources
Epilepsy Centers
Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.
Epilepsy Medication
Find in-depth information on anti-seizure medications so you know what to ask your doctor.
Epilepsy and Seizures 24/7 Helpline
Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.
Tools & Resources
Get information, tips, and more to help you manage your epilepsy.